The National Nursing Consensus Gudlines are out to consultation with the CAG!
October 22, 2024
Years in the making.....
After, what feels like a lifetime, we are very excited to announce that the National Nursing Guidelines are now out to consultation with the Clinical Advisory group (CAG). This collection of CF professionals will appraise the document and make comments and suggestions for our review.
We hope the final document will be ready for release in January 2025! 24 years after the current document!!!!
Years in the making.....the standards are now LIVE!
Royal Air Force Club, London 23rd of October 2025
Cystic Fibrosis Trust are bringing back their free one-day conference for CF multidisciplinary team members and others involved in CF care and treatment. The event on 20 March 2025 at the Birmingham Conference and Events Centre will focus on the future of CF care, bringing together professionals working in CF for a mix of plenary and panel sessions, as well as engaging, clinically-led workshops. Find out more and register at www.cysticfibrosis.org.uk/about-us/conferences-and-meetings/MDT-2025
Wishing all our CFNA members a very Merry Christmas and a Happy New Year!
Congratulations to CFNA member Cystic Fibrosis Nurse, South Warwickshire University NHS Foundation Trust who WON the Outstanding CF Paediatric Care Award. Yasmin said 'I love my job as I get to work with amazing children and parents. I also work with a really supportive and encouraging team. So this award is for them too.' Alongside Yasmin, Mark Butler and Jacqueline Francis were also nominated for their amazing work. It is fantastic to see CFNA members flying the flag for nurses and being recognised for the care they provide. You can watch the awards and read more here- Meet the finalists in our 60th Anniversary Awards
The RightCare cystic fibrosis toolkit has now been published on the NHS England website. It was a privilege to work on this toolkit with my fellow professional group chairs, CF Consultants and community representatives. As below, it does not cover all aspects of CF care/service, as this is vast (as we well know), it does however focus on key areas where inconsistencies in service provision have been identified. You can access the toolkit below. This RightCare toolkit will help support systems to understand key priorities and ways of optimising cystic fibrosis care, by providing key actions for improvement. It presents several priority areas across the cystic fibrosis pathway that highlight new and emerging areas of care, and where we know there is unwarranted variation that would benefit from further review and improvement. The toolkit includes a self-assessment questionnaire which provides a method for assessment and benchmarking of current services.
The third edition of the Standards for the clinical care of children and adults with cystic fibrosis in the UK have been published on the CF Trust website and are available to download, use, and share.
Central Church, Bristol 19th September 2024
It was fantastic to see so many fellow CF nurses at ECFS in Glasgow. There was a great variety of posters by CF nurses including our very own CFNA poster, highlighting the results of our members survey! Congratulations again to Justine Coatman, Paediatric Cystic Fibrosis Clinical Nurse Specialist, Kings College Hospital (picture below), who won our ECFS registration draw. A really interesting piece of work we look forward to hearing about at our CFNA study day!
When the University Hospitals Plymouth CF Team were approached with the request for a photography student to join clinic and capture life with CF as part of her project we jumped at the chance.
