Years in the making.....
The RightCare cystic fibrosis toolkit has now been published on the NHS England website. It was a privilege to work on this toolkit with my fellow professional group chairs, CF Consultants and community representatives. As below, it does not cover all aspects of CF care/service, as this is vast (as we well know), it does however focus on key areas where inconsistencies in service provision have been identified. You can access the toolkit below. This RightCare toolkit will help support systems to understand key priorities and ways of optimising cystic fibrosis care, by providing key actions for improvement. It presents several priority areas across the cystic fibrosis pathway that highlight new and emerging areas of care, and where we know there is unwarranted variation that would benefit from further review and improvement. The toolkit includes a self-assessment questionnaire which provides a method for assessment and benchmarking of current services.
The third edition of the Standards for the clinical care of children and adults with cystic fibrosis in the UK have been published on the CF Trust website and are available to download, use, and share.
Central Church, Bristol 19th September 2024
It was fantastic to see so many fellow CF nurses at ECFS in Glasgow. There was a great variety of poster by CF nurses including our very own CFNA poster, highlighting the results of our members survey! Congratulations again to Justine Coatman, Paediatric Cystic Fibrosis Clinical Nurse Specialist, Kings College Hospital (picture below), who won our ECFS registration draw. A really interesting piece of work we look forward to hearing about at our CFNA study day!
When the University Hospitals Plymouth CF Team were approached with the request for a photography student to join clinic and capture life with CF as part of her project we jumped at the chance.
Happy nurses from the CFNA committee working on the CF Trust national nursing guidelines! We are very proud of the new format which encompasses the voice of people with CF and celebrates the role of the nurse! We can't wait to share them with you!
The CFNA's annual national study day provides an exceptional opportunity for healthcare professionals to refine their expertise and exchange knowledge with colleagues.
Join the CFNA
Any registered nurse who is working within the field of Cystic Fibrosis is eligible to become a member of the group.
